This article is about Myotonic Dystrophy 2022. Read and grab the valuable information from the article.
Have you ever heard of Myotonic Dystrophy Foundation Mission? If not, read out to know about it.
Millions of people in the world are suffering from the disease myotonic dystrophy. Most people in the United States and Canada are suffering a lot.
Myotonic Dystrophy Foundation is the only world largest patient organization globally available for the treatment of this disease.
This disease does not have any cure or permanent medication. Yet Myotonic Dystrophy 2022 foundation is trying its best to cure the patients.
What is the news about Myotonic Dystrophy?
Myotonic Dystrophy Foundation (MDF) was formed in the memorial of Gilbert Gottfried, who fought bravely with DM type 2, which has brought many complications.
The foundation is located in Oakland, CA. There will be an annual conference on September 9 and 10,2022 at Paradise point in San Diego, CA. This year’s conference includes sessions on drug development, exploring symptom management, updates from the foundation, and more.
This mission aims to provide medical aid to patients suffering from this deadly and unrecognizable disease.
Most of the patients are suffering from Myotonic Dystrophy II Type. Let us find out what this disease is.
What is Myotonic Dystrophy?
Myotonic Dystrophy is scientifically named dystrophia myotonica, which is commonly called DM. It is a rare genetic disease caused in 1out of 2,100 people, and there is a chance in 3.6 million people around the world.
It is an inherited disease that is passed through generations through mutated genes. It is commonly seen in gron-ups as muscular dystrophy.
Still, most people are unaware of the disease, even if they have it. The symptoms of DM vary from person to person.
Myotonic Dystrophy 2022 aims to help in developing medication and focus on the variant.
DM has two variants, namely, DM1 and DM 2. Many people suffer from type II, which doesn’t have any cure. Overall, in the world, 35 biopharmaceutics are researching a solution.
In 2019, there has launched a project for drug development and finding out its complications. They have found that the treatment of DM 1 applies to some extent to DM2.
The project is under the Myotonic Scientific Advisory Committee. There are a lot of complications in this type.
Our ways to fight II Type of Myotonic Dystrophy 2022
The foundation aims to fight the disease by educating about it. They provide resources and advocate for a cure. They support and communicate with the myotonic dystrophy community.
The mission does roadshows and forms local supporting groups. They educate the people to identify through various activities like:
They provide a comprehensive toolkit with information for newly diagnosed families and doctors.
They support their patients by MDF warmline, with the staffed phone to individuals by listening and advising them how to deal with DM.
They provide a digital academy on www.myotonic.org with recorded videos about myotonic dystrophy. So on with the MDF conference.
Note: All information obtainable in the article is from the web.
Conclusion
Myotonic Dystrophy 2022 is being held to extend its valuable services worldwide for people suffering from this incurable disease.
Do you know about this foundation? Please share your views about the foundation below.
Click here to know more about MDF 2022.
Also Read : – What Myotonic Dystrophy Type II {April} Know Symptoms!